January 22nd - Lilyana had an MRI. She has Sacrococcygeal Teratoma, basically a tumour that has developed at the tail bone. Should be benign. Haven't seen anyone about it yet, we have a pencil booking at Starship for just before Easter, but sadly nothing finalised. So some more waiting. Thankfully I'm at ease about it all and am thankful that Lilyana doesn't seem to be in pain or uncomfortable.
March 18th - Went to Starship hospital today for Lilyana. A lot of waiting which was to be expected, some information and bloods tests were done. Monday 24th Lilyana will go in again, they will put her under GA and have a good feel to confirm that it is a tumour on the tail bone and to gain needed information for surgery. Date for surgery is Monday March 31st.
March 24th - Lilyana and I will be admitted into Ward 24B at starship on Sunday afternoon all ready for Lilyana to have the tumour removed on Monday morning. Lord willing she will be all good to come home on Thursday 3rd April. Would appreciate your prayers during this time.
April 4th - We came home from hospital yesterday afternoon and had a very restful afternoon. Derek is struggling to be even more gentle with his sister than usual, hopefully he gets the hang of it. Lilyana is happy and active. At times she seems uncomfortable and sits on a strange angle. Sadly on top of it all her top two teeth are trying to come through.
For those that don't know they removed a tumour on Lilyana's tail bone, the surgeon wasn't happy with the tissue and suspects it may be cancerous. They also removed the last tail bone and some of the next bone. Being close to the spinal nerves it may have affected those that control bowel and bladder movements, only time will tell. We are now waiting for test results from the tumour and bone they removed to know what the next steps are, this will take some weeks. For now life goes back to 'normal' except for regular blood tests for Lilyana.
April 16th - Today we went into Starship hospital to hear the results of the tumour, for Lilyana to have a CT scan, and talk to the 'cancer doctor'. Lilyana's tumour was cancerous and they are not confident from their tests that they got it all. CT scan showed that the lungs are clear from cancer, hopefully indicating it hasn't spread through her body. Continued blood tests have been showing a decrease in the alpha-fetoprotein (cancer indicator). We now ask for your further prayers as we make the decision to either wait and see what happens or to start chemotherapy now. With both having so many pro's and con's and so many risks it will be a difficult decision.
No comments:
Post a Comment