Walking :-)

Thank you all for your prayers, cards, meals, baking, child minding, vouchers for petrol and supermarket, fire wood, gifts and messages. We have been very blessed. It has been nice to not have to worry about our finances during all of this. God has been very good to us as a family and to Lilyana who has been doing amazing after round two. Our prayers have been answered in regards to Lilyana not experiencing most of the bad side effects. Although she doesn't always sleep well at night and can be very fussy when it comes to food (treatment can affect taste buds).

May 31st - The start of a great weekend. Jo and Roley came to stay for the long weekend with Heidi (Big thanks to John and Harriet for looking after the other 3 kids). Lilyana thought Aunty Jo was the bees knees, as did Derek. 

Very blessed with some fire wood too, had lots of fun stacking half of it. Actually Lilyana wasn't very impressed because she just wanted to be held :-(.

Lilyana had a bad night, she was so itchy from her eczema that she itched off the dressing over her Hickman line, we tried to redress, but failed. Went to A&M clinic here in Pukekohe to get it dressed properly as soon as they opened Sunday morning, by this time she had pulled on her line and scratched around it that it had bled some.

June 1st - My beautiful niece's 3rd birthday :-). A great day. Lilyana decided to walk today, not just a few steps but walk. Davy got a clip of it, see below.

June 2nd - My beautiful niece's 2nd birthday :-).
Got the rest of the fire wood stacked. And sadly all good things have to come to an end. Real sad to see Jo and Roley leave, and Derek was most upset to wake from his afternoon sleep to find them gone.

While Jo was here she made Lilyana a few things, she made a crochet Lily which became the pompom on one of the hats.

Back view of the lily hat

Front view of the lily hat

The lily pompom

June 3rd - My beautiful niece's 5th birthday :-).
Not much happening today. Lilyana has slept a lot and feels cold to the touch, going to have to put layers of clothes on her. Tante Jody and Uncle Ben made us a roast for dinner and came to help eat it too. Lilyana was happy to show off her walking skills but mainly enjoyed the fact that there were more people to hold her.


June 4th - This morning we had a visit from the Kidz First Nurse to change the dressing and to flush the Hickman line. And a visit from Lab Test to do Lilyana's weekly blood test. Lilyana does so well not to wriggle and scream, she just sits/lies and watches. Visit from Oma after work, once again Lilyana willingly showed off her new skill and to get lots of cuddles.

Lilyana already for breakfast

June 5th - Lilyana was cold this morning. Got the fire blasting and she warmed up. This week blood tests results are Haemoglobin 93, platelat 282 and neutrophils 1.1. Praying that these don't drop any more over the next week.

Davy and I got to go out for dinner tonight (without kids), was lovely.


Sorry this wasn't a real interesting blog, nothing really to report, things are going well :-)

Praise God